Children With Spina Bifida: A Parent's Guide (The Special Needs Collection) - Reference, for parents and families, providing information, guidance, and support to help meet their child's intensive needs from birth through childhood. Covers symptoms, prenatal diagnosis, neurosurgery, bowel management, physical therapy, emotional health, education, causes, grief, development, parenting issues, and legal issues.

Spinabilities A Young Person's Guide to Spina Bifida - I recommend this book not only for teens, but parents, because it explains spina bifida in very easy to understand terms, and can help parents of younger kids think about things they can do now to help their children grow into independent adults.